NHS labs fail to share data vital for diagnosis and care of rare diseases, investigation finds
2 sources·Updated October 8, 2026

Covered by 2 sources
- News-Medical·6h agoThree NHS genetics labs fail to routinely share vital variant data
Three out of England's seven NHS genetics laboratories are failing to routinely share vital information about genetic variants in public databases that helps patients with rare diseases access diagnosis and care, reveals an investigation by The BMJ today.
Read at News-Medical → - Medical Xpress·13h agoNHS labs fail to share data vital for diagnosis and care of rare diseases, investigation finds
Three of England's seven NHS genetics laboratories are failing to routinely share vital information about genetic variants in public databases that helps patients with rare diseases access diagnosis and care, an investigation by The BMJ reveals.
Read at Medical Xpress →

