'If it's down to money, shame on them': Bereaved Cork dad hits out at decision not to fund drug
3 sources·Updated August 11, 2026
Drug funding dispute
Covered by 3 sources
- The Journal·7h agoTreatment for Friedreich's ataxia should not be funded by HSE, drugs group recommends
The HSE Drugs Group made the recommendation following a meeting to consider an application for the reimbursement of Skyclarys.
Read at The Journal → - Irish Independent Life·9h agoSufferers of Friedreich’s Ataxia face major setback as HSE Drugs Group rejects Skyclarys reimbursement
There is still hope as the recommendation will have to go before a meeting of HSE senior management on August 25 for a final decision
Read at Irish Independent Life → - Irish Examiner·9h ago'If it's down to money, shame on them': Bereaved Cork dad hits out at decision not to fund drug
HSE Drugs Group recommended against funding Skyclarys, a treatment for the rare genetic condition Friedreich's ataxia, despite hopes it could benefit around 200 patients in Ireland
Read at Irish Examiner →
