'If it's down to money, shame on them': Bereaved Cork dad hits out at decision not to fund drug
4 sources·Updated August 12, 2026
Drug funding dispute
Covered by 4 sources
- Irish Times Health·6h agoFather of boy with Friedreich’s ataxia devastated as HSE recommends against drug funding
Craig Coady lost his 13-year-old son Rory to the disease last year and says his other son Paudie had hoped to benefit from the drug
Read at Irish Times Health → - The Journal·18h agoTreatment for Friedreich's ataxia should not be funded by HSE, drugs group recommends
The HSE Drugs Group made the recommendation following a meeting to consider an application for the reimbursement of Skyclarys.
Read at The Journal → - Irish Independent Life·20h agoSufferers of Friedreich’s Ataxia face major setback as HSE Drugs Group rejects Skyclarys reimbursement
There is still hope as the recommendation will have to go before a meeting of HSE senior management on August 25 for a final decision
Read at Irish Independent Life → - Irish Examiner·20h ago'If it's down to money, shame on them': Bereaved Cork dad hits out at decision not to fund drug
HSE Drugs Group recommended against funding Skyclarys, a treatment for the rare genetic condition Friedreich's ataxia, despite hopes it could benefit around 200 patients in Ireland
Read at Irish Examiner →
